Ethics and Global Governance of Human Germline Genome Editing: The Problem of Techno-Scientific Colonialist Paternalism

 

Đã lưu trong:
Chi tiết về thư mục
Tác giả: Arguedas Ramírez, Gabriela
Định dạng: artículo original
Ngày xuất bản:2020
Miêu tả:I want to enrich the debate about the ethics and governance of human germline editing (HGE) by emphasizing an underappreciated, yet important, set of concerns regarding exclusionary practices, norms, and efforts that impede a broader discussion about the subject. The possibility for establishing a binding, global, regulatory framework is influenced by economic and geopolitical factors as well as historical processes and sociopolitical problems, such as anti-scientific social movements and the politicization of science. Likewise, it is influenced by different understanding, epistemic resources, and goals between the CRISPR/genome editing community and the rest of society. In this Perspective, I explain the concept of ‘‘techno-scientific colonialist paternalism’’ and why it negatively affects our discussion around HGE. I also discuss the pitfalls of scientific self-regulation, and finally, I advocate that the implementation of HGE should cease to allow time and care for a thoughtful global discussion to emerge.
Quốc gia:Kérwá
Tổ chức giáo dục:Universidad de Costa Rica
Repositorio:Kérwá
OAI Identifier:oai:kerwa.ucr.ac.cr:10669/82765
Truy cập trực tuyến:https://hdl.handle.net/10669/82765
Từ khóa:Bioética
Genoma
Política científica
Tecnología médica
Investigación genética