Quality of life and caregiver burden in mothers of children with microcephaly.
Na minha lista:
| Autores: | , , , , , |
|---|---|
| Formato: | artículo original |
| Estado: | Versión publicada |
| Fecha de Publicación: | 2026 |
| Descrição: | Introduction: Due to congenital infection, children with microcephaly have great limitations due to thiscondition. These limitations make the child need more health and home care. Generally, the motherbecomes the main caretaker for this child, this role can lead to overload feelings that affect their qualityof life.Objective: To analyze the role overload and the quality of life of mothers or primary caregiver ofchildren with microcephaly related to congenital infection.Method: Cross-sectional, correlational study carried out with 105 participants from the state of Sergipe,Brazil, during the period from October 2017 to April 2018, through the application of questionnaires:sociodemographic, WHOQOL-Bref, and caregiver burden. For statistical analysis, ANOVA, t-test, andPearson (r) tests were used.Results: All of the participants were females, 39 % were classified with severe role overload and 30.5%with intense role overload. The total average of this caregiver burden (49.47) presents a moderate tosevere classification. There was a strong correlation (p<0.0001) between the levels of their roleoverload and the domains of their quality of life, where the greatest damage was in the environmental(36.57) and physical (38.53) aspects. A significant and inversely proportional correlation (r=-0.547,p<0.0001) was observed between the quality of life and the caregiver burden.Conclusion: Mothers suffer severe and intense caregiver overload that has a negative influence on theirquality of life. Nursing can contribute to the creation and implementation of specific lines of care forthese women emphasizing the promotion of physical and mental health to improve their quality of life. |
| País: | Portal de Revistas UCR |
| Recursos: | Universidad de Costa Rica |
| Repositorio: | Portal de Revistas UCR |
| Idioma: | Portugués |
| OAI Identifier: | oai:portal.revistas.ucr.ac.cr:article/8476 |
| Acesso em linha: | https://revistas.ucr.ac.cr/index.php/renfermeria/article/view/8476 |
| Palavra-chave: | Caregivers Quality of Life Microcephaly Mothers Nursing Calidad de vida Cuidadores Madres Enfermería Microcefalia Enfermagem Qualidade de vida Mães |